Update

Well Colorado is was great. The adaptive Expo was really good we have seen a lot of things to improve Evan's independence. It was also good to see Dr. Hus who said to that he would like some blood work done and a few other test to see if Evan's sleep apnea is back that might be the cause of his sleepiness and for the blood pressure he wants a to try a new drug to up the pressure which I think has help him. Now if we could get the neck pain to be less he would be a lot happier man. The blood work came back normal and things seem to be doing well at the moment. Now life is giving us new test to face and new challenges. Evan and I have celebrated our 17th anniversary. I want to thank all of you for your support, love and prayers. Love Robyn

Update

Well Evan has another infection which is oral resistant. So he now got a pick line and is having IV Meds every 12 hours. The infection just seems to going around in circles oral meds until the meds need to be IV. We are getting use to the cycle and hope maybe we can break it soon. The days are starting to get sunny and we are now able to enjoy the sun and being outside. Evan and I are heading out to Colorado for a adaptive Expo and for a Dr. appointment with the SCI Dr. next week so lets hope all goes well and we will be able to get the low blood pressure issue fixed also. I will update again as soon as I have some more news to tell you all. Thank you for all the support, Love and prayers you send our way they are greatly appreciated. Love you all Robyn