Another year coming to a close.

Well this year is getting closer to the end and a New Year is underway. We have had a pretty busy year and have stayed away from hospital stays for Evan which is nice. It has been a good healthy year for Evan. We are so grateful for all of the family and friends we have. Logan has successfully finished off another year of football and in the spring will start track. He is right now doing swing club and is thinking about doing another play. Marlene is in a honors club and is going to do track this spring. She really loves her classes at school and is doing well. Brittney is enjoying school. She plans to go out for the school play. She also plans to do track in the spring. Christopher is doing well in school. He is doing well with scouts and at the rate he is going will have his Eagle before Logan. Tresithney and Sariah are doing preschool this year and are really having a lot of fun. As for me I am trying to keep up with all the actives the kids have and help Evan. Life gets busy at the Sleight home like everyone else. It seems we are starting to adjust to the changes that have happened in the last year and a half. In March it will be two years where does the time go.

I am so happy that Evan is doing so much better. His body I think is starting to finally adjust to the changes. He still has pain and things that he still can not do. He stamina is still low and he takes naps often. It is how he makes it thru the day. He just recently got new arm rests put on to his chair and he loves them. Things are starting to get cold up here in Mantua. Evans body really rebels against the cold.

Well there are some exciting things in the mix hopefully one will come through so we can make Evan even more independent. We have put in to Habitat for Humanity and we are being nominated for Extreme Home Makeover by so really good friends. Now it is just a waiting game to see who is going to give us a answer. Keeping the fingers crossed.

We here at the Sleight home thank everyone for all the wonderful things you have done for us and all the prayers we have received it all helps. We would also like to Wish all of you a very Happy Holiday, Merry Christmas and Happy New Year. We love each and everyone of you and hope all is well with you and your families.

Love The Sleight Family

Summer is over.

Well the trip to Craig Hospital was very productive. Evan is trying out some new arm rests which so far he loves. The kids are all back in school and the little girls are going to be starting preschool soon. It has been a really good summer. The older kids have had their scout or girls camps. Logan is now doing football and he is really enjoying it. Evan loves football season and loves watching Logan play. Evan has been doing well and has not been sick for quiet awhile now let hope and pray as it starts to get colder that he continues to stay well. Thank you for all your prayers and support for Evan it is greatly appreciated. We love you all. Robyn

Off to Craig again

Well we are off to Colorado to have some repairs done on Evan's Chair. Things are going well for Evan. Logan has started his football season and that is one thing Evan enjoys to watch his boy play football. The summer is almost over and school is about to start. I know Evan and I are ready so are some of the kids. Tresithney and Sariah start preschool this year they are growing up so fast. Well as you can see the family is doing well and so is Evan. Thank you for all your love and concern. Robyn

UPDATE

Well it has been a few crazy weeks here at the Sleight home. We had a friend from Switzerland here for three weeks, trip to Vegas to see family, boys camps and football. Life has been fun. Evan is doing well he has not been sick since May and this has made things nice for him. We are still waiting on the Government for Evan's decision for retirement. Got to love the Government and the dragging there feet. Hurry and get it all in and the sit and wait until we get to you. So frustrating. We are so grateful for all our wonderful friends and family. Thanks to all of you for the prayers and support you have given to all of us. Love Robyn

Warm weather is here

Well Things are going well Evan has been free of illness for a month now and his blood pressure is behaving for now. The weather is warm and the family has been able to do walks around the block at night which has been really nice. Lets hope that things stay good for a long while. We are so gratful to have the friends and family we do. We are still waiting to hear if Evans retirement has been approved ya got to love the goverment and the speed LOL. So thanks to Evans coworkers who are helping with donated leave. It is a wonderful blessing to have such great coworkers, freinds and family who care so much for Evan Thank to you all. Love Robyn

Well Evans Blood pressure issues are starting to stop. I think we have finally found the fix. It has finally warmed up enough that we have been able to keep Evan well. His last infection has been about three weeks now so that is also nice that he is feeling well and we have been able to be outside and enjoy th warm weather. Evan and I have been able to go for walks with the kids and it is nice to see him out in the sun with his kids. I am so grateful to all our family, Friend and Evans coworkers for your love and prayers. Love to all Robyn

Update

Well Colorado is was great. The adaptive Expo was really good we have seen a lot of things to improve Evan's independence. It was also good to see Dr. Hus who said to that he would like some blood work done and a few other test to see if Evan's sleep apnea is back that might be the cause of his sleepiness and for the blood pressure he wants a to try a new drug to up the pressure which I think has help him. Now if we could get the neck pain to be less he would be a lot happier man. The blood work came back normal and things seem to be doing well at the moment. Now life is giving us new test to face and new challenges. Evan and I have celebrated our 17th anniversary. I want to thank all of you for your support, love and prayers. Love Robyn

Update

Well Evan has another infection which is oral resistant. So he now got a pick line and is having IV Meds every 12 hours. The infection just seems to going around in circles oral meds until the meds need to be IV. We are getting use to the cycle and hope maybe we can break it soon. The days are starting to get sunny and we are now able to enjoy the sun and being outside. Evan and I are heading out to Colorado for a adaptive Expo and for a Dr. appointment with the SCI Dr. next week so lets hope all goes well and we will be able to get the low blood pressure issue fixed also. I will update again as soon as I have some more news to tell you all. Thank you for all the support, Love and prayers you send our way they are greatly appreciated. Love you all Robyn

Well Evan was doing better but yesterday started not feeling good. I took him to the doctor and he has another infection. It seems we go from the on infection to another. I am hoping as the weather starts to warm up the infections will stop. The family is doing well and we are all gettig ready for Easter and the kids are on spring break and get to spend time with
Evan. So for now this is our update. Thank you again for all your love,support and prayers.
Robyn

UPDATE

Sorry here is the update Evans blood work came back Neg. so things there are good. Now if we could get him to feel better and not be sick all the time he would be a lot happier. He is sick again and on a different drug to see if it will work. Hopefully this will be the magic drug and Evan can start to feel better and can move forward. Now the other thing is could we get warm weather so he can go outside and in joy the sunshine and warm weather. I think thatwould help also because he is getting cabin fever I am sooo with him on that. I am ready for warm weather were we can go for walks and be outside.

Well I also beleive that the warm weather will stop all the infections. Thank you for all your prayers and for thoughts. We love you all. Robyn